<![CDATA[Natural Help for Neurofibromatosis - Blog]]>Sat, 02 Jan 2016 10:13:42 -0800Weebly<![CDATA[Great book on self-healing from Dr. Schulze]]>Wed, 29 Jan 2014 20:47:18 GMThttp://www.naturalneurofibromatosis.com/blog/great-book-on-self-healing-from-dr-schulzeI enjoyed the book Keep Calm and Get Healthy by Dr. Schulze.

He basically says the body can heal us of and manage most things, but that we have to put the work in to support our body's strength to do that, saying expecting to heal without work is like expecting a horse to win a race when it is fed badly and not exercised.


It is great, for a change, for a doctor to be supporting us in our efforts to heal our bodies.


He advocates a meat-free diet during the detox, but few people can be meat-free forever without problems, so I'd take that part to be just about the detox period (a week or a few weeks).
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<![CDATA[How to make supplements and other treatments work better]]>Fri, 15 Nov 2013 21:43:01 GMThttp://www.naturalneurofibromatosis.com/blog/how-to-make-supplements-and-other-treatments-work-betterHere's a great article on how to make any supplements or treatments you're using go farther.

If you're going to put effort and money into them, why not make them work better?

Moving some and having a healthy diet and plenty of clean water are among the ideas.

How to Potentiate Herbs and Supplements]]>
<![CDATA[Support for partners of people with neurofibromatosis]]>Mon, 23 Sep 2013 05:54:46 GMThttp://www.naturalneurofibromatosis.com/blog/support-for-partners-of-people-with-neurofibromatosisAre you a partner - boyfriend, girlfriend, domestic partner, or spouse - of someone with neurofibromatosis? 

If so please get in touch using the contact form!

It can be a little emotional getting involved with someone with NF - both because of seeing how sad the disease is (and many of us had never heard of it before meeting our partners) and also because of the uncertainty about what they might deal with and wanting to help them to be healthier. 

If anyone else wants to talk about it, write to me.

Also, sometimes it seems that partners have an easier time doing the research - it's less emotional to research the disease when you don't have it yourself. I've been doing a lot of research and sharing some of it with my boyfriend. 

Also sometimes one member or another in a couple will be more interested in health research, and that person can do health research for both people. 

All in all, I'd be really excited to meet other partners of NF folks who are working on finding natural methods to help the condition! 

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<![CDATA[Low-carb diet for cancer on the news]]>Sun, 22 Sep 2013 00:00:02 GMThttp://www.naturalneurofibromatosis.com/blog/low-carb-diet-for-cancer-on-the-newsThe ketogenic diet - or basically eating low-carb enough that the body produces some ketones, seems to help with many conditions. 

Too much glucose, on the other hand, seems to make many conditions worse.

Based on the testimonials page, where many people say that sugar makes neurofibromatosis, and given that sugar stimulates mTOR and cell division, I wonder if a low-carb, low-sugar diet would be helpful for NF.

Here's the news report on CBN News:

Starving Cancer: The High-fat Ketogenic Diet

I wouldn't use coconut oil though, except for specific brands, since many brands are high in mycotoxins. 

I like how the reporter says she uses a moderate ketogenic diet, which has more carbs than the strict ketogenic diet but fewer than the average American eats.

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<![CDATA[Getting holistic doctors to tackle NF]]>Fri, 20 Sep 2013 20:15:02 GMThttp://www.naturalneurofibromatosis.com/blog/getting-holistic-doctors-to-tackle-nfFor many other conditions like cancer and diabetes, there are holistic and integrative medicine doctors, trained in nutrition and supplements, who can help people who want to take a holistic approach to managing the condition.

However, I don't know of any integrative medicine doctors or naturopaths who specialize in neurofibromatosis.

Given that 1 in 3,000 people have NF, you'd think that more doctors would look at it.

Maybe some holistic doctors, particularly those with an interest in holistic management of cancer or any diseases with anything in common with NF, could be encouraged to tackle it, specialize in treating it, etc.]]>
<![CDATA[Cure to Cancer Summit]]>Fri, 20 Sep 2013 20:02:59 GMThttp://www.naturalneurofibromatosis.com/blog/cure-to-cancer-summitNF isn't cancer, but there are some mechanisms in common. pH seems to impact both conditions, and mTOR is involved in both.

I've been listening to talks on the Cure to Cancer Summit. There are some great doctors sharing their wisdom. The talks are available free for 24 hours after being broadcast. Today is Friday, Sept 20 and the summit continues until September 28.

Here's a link to the talks: http://thecuretocancersummit.com/schedule/

Here's the main page for the event: The Cure to Cancer Summit

Great free talks to learn about holistic management of tumors!

I wonder if any of these doctors might be interested in tackling NF as another specialty, or if they would research whether some of their approaches would help with neurofibromatosis. I might write to some of them with some information about NF and see what they say.]]>
<![CDATA[Autophagy and intermittent fasting]]>Fri, 20 Sep 2013 20:00:26 GMThttp://www.naturalneurofibromatosis.com/blog/autophagy-and-intermittent-fastingI've been reading a lot about autophagy and its applications to cancer prevention, detoxification, decreasing oxidative stress, and gene expression.

It is unclear if it would apply to NF. However, Rapamycin is a major stimulator of autophagy, and Rapamycin seems to have done well in some clinical trials.

It seems that in the past humans had times when they had less food, and the body would recycle cells at those times, but now we have food most of the time, so perhaps that natural mechanism is not there.

Again, unclear how if at all this would apply to NF. Just been interesting reading about it.]]>
<![CDATA[Anyone like the site? Any reports?]]>Sun, 08 Sep 2013 23:18:07 GMThttp://www.naturalneurofibromatosis.com/blog/anyone-like-the-site-any-reportsJust want to hear what you all think, visiting the site. 
Anything you think I should add?

Most importantly, have you ever noticed things that made NF worse or better of you or had any results from diet or supplements?
Send a message in the contact form and your report will be added to the list (can be anonymous)!]]>
<![CDATA[Learning more about autophagy]]>Sun, 08 Sep 2013 23:13:20 GMThttp://www.naturalneurofibromatosis.com/blog/learning-more-about-autophagyI've been learning more about autophagy and the mTOR pathway lately and posting articles on the site. 

Basically autophagy is cell recycling (both of cells and mitochondria) that happens during times of less food availability or that is promoted by certain factors, and it could have a role in cancer prevention and in other aspects of health.

It's very interesting to learn about how Rapamycin, a TOR inhibitor that has had some good reviews in clinical trials for NF and also good results for tuberous sclerosis which is similar to NF, is a potent stimulator of autophagy. 

It's very interesting. Autophagy is just starting to be researched more, at a basic molecular biology level, and perhaps the research will come to yield more clues. 
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<![CDATA[Facebook page started]]>Tue, 03 Sep 2013 01:05:00 GMThttp://www.naturalneurofibromatosis.com/blog/facebook-page-startedWe now have a Facebook page

Follow us on Facebook to get site updates when new pages are added or new research or testimonials are found.

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