If so please get in touch using the contact form!
It can be a little emotional getting involved with someone with NF - both because of seeing how sad the disease is (and many of us had never heard of it before meeting our partners) and also because of the uncertainty about what they might deal with and wanting to help them to be healthier.
If anyone else wants to talk about it, write to me.
Also, sometimes it seems that partners have an easier time doing the research - it's less emotional to research the disease when you don't have it yourself. I've been doing a lot of research and sharing some of it with my boyfriend.
Also sometimes one member or another in a couple will be more interested in health research, and that person can do health research for both people.
All in all, I'd be really excited to meet other partners of NF folks who are working on finding natural methods to help the condition!